Itās March. I canāt believe it! Q1 almost done.
For me, because I have kids, this also means spring break is nearly upon us, and summer isnāt far off.
Iāve been working on getting summer camp set up for this summer since October of last year. No joke. In NYC, there is a line for EVERYTHING, and summer camp is no exception.
And with Leo, because he needs more supervision and special accommodations, itās been even more of a journey.
Thereās only one, ONE, summer camp that would accommodate him within anything that could be considered commutable distance.
And I got us in!
But Iām still worried.
Last year, he was in a special summer version of his pre-k program. It ended a couple weeks before summer ended so we had to put him into a couple weeks of a āregularā camp for that length of time.
They welcomed him with open arms initiallyā¦but about 4 days in, they sent him home and said he canāt come back. No grace period, no warning.
This isnāt the first time thatās happened in exactly that way. Initially things being okay. Then hearing nothing. Then heās abruptly ejected.
Leo isnāt a bad kid. Heās a really, really good one.
But people run into stuff with his needs that they donāt understand (and that looks scary to them) and that is disruptive to how they need to run their program.
It could easily happen again.
Itās so, so hard to try again knowing that it could happen again.
The last time he got kicked out, I picked him up, got us home, made it to the entry way, and then I had to stopā¦and just lie down right there on the floor and cry for a while. I couldnāt get all the way to my bed.
(Alan brought me a blanket and read me a book.)
When Leo gets rejected, it rekindles all the rejection Iāve ever felt in my life...and then I feel it one more time on his behalf. And then I feel it a third time thinking about all the future rejection that might be waiting for him in life.
ā¦Leoās actually doing really well, despite how it sounds.
He has come LIGHT YEARS from where he was able to go just four years ago.
Four years ago, he couldnāt speak more than two words together.
Four years ago, his eloping was so bad that we had to lock him in his room at night so he wouldnāt wake up and wander out of the apartment while we were sleeping.
Four years ago, we had to take all the books and toys out of his room because heād rip them up and throw them at the wall if we left him alone with them.
Four years ago, his autistic panic attacks were so constant that we couldnāt really do anything outside the house. Couldnāt go to restaurants. Couldnāt get through a doctorās appointment without both of us holding him.
But now...it's actually hard to imagine ANY of that happening.
I could give in to my fear. I could pull him away from any and every situation that I believe he canāt handle or that he might get rejected from.
But then, heād never get a chance to experience swimming lessons, field trips, sun-soaked play dates with new friends. Heād never get a chance to PRACTICE grappling with a new strange thing.
There are indescribable joys and opportunities for growth waiting just around the corner from my worst fears for him.
I've been called out to face my fears and hold space for Leo to experience new and wonderful things even when he might not yet be fully equipped with the right skills to handle the new thing.
I tell you this simply because...
Maybe you and I can hold such space for ourselves, too?
Space to learn. Space to f*ck it up.
Even when the experiment fails, something is gained. Growth is happening. Lie down on the floor and cry if we must, and then we go again.
Peace,
Cathy

